It's Relevant: Local News, Sports and Deals
Stamford Edition
Change to: Greenwich | Norwalk | Westport

Malta House Looks for Volunteers to Support Moms
Live Green Fest a Zero Waste Affair


Norwalk Family Fights Rare Disease

"Lizzy's Walk" battles mitochondrial disease

Issue Playing Video? Please Click to Report
Norwalk, CT | Added on September 14, 2013 At 11:10 AM

Norwalk's Elizabeth Piro has a rare mitochondrial disease called Kearns-Sayre Syndrome (KSS).

Her mother, Paula, says her daughter has a hard time staying energized.

"Her day has to be structured around making sure she gets enough rest," she says.

Currently, there is no cure for Lizzy's disease.  That's why her family and friends gathered Saturday for Lizzy's third annual Walk for KSS at Calf Pasture Beach.

Lizzy's cousin, Keelin Walsh, started the walk three years ago.

"She has a lot more disabilities than your normal 14-year-old girl," she says.

Besides constantly having her energy level monitored, Lizzy needs to use a feeding tube to get most of her calories.

"She eats, but not enough to maintain a healthy weight," Paula says.

So far the family has raised $80,000 for the United Mitochondrial Disease Foundation.

Lizzy's case has also been taken up by the National Institute of Health's undiagnosed disease program.

"The money going to the researchers is really helping," Walsh says.

"Anything going on in the world, we'll be the first to know [through the NIH]," Paula says.  "Lizzy will be one of the first people they'll test [a cure] on."

Walsh says the walk isn't just about her cousin.

"There are so many other children affected by mitochondrial disease.  It'd be awesome to see other people benefit from [the walk], too."

To learn more about Lizzy and her disease, visit this link:

Share Your Thoughts

More Health/Fitness Stories



The Videos

Video Archive
Submit a News Tip
Submit a Photo


About Us
Contact Us
Advertise with Us
Privacy Statement
Terms and Conditions


Ā© 2010-2013, Its Relevant, LLC

It's RelevantĀ® graphics, logos, scripts, terms of use, instructions, designs and other service names are the trademarks and copyright of It's Relevant, LLC.

Email: or Call: 855-487-7353