“I felt kind of alone and it was a little bit of a scary time.”
In 2010 Michael Rothman was diagnosed with CIDP at just 16-years-old.
“It’s Chronic Inflammatory Demyelinating Polyneuropathy,” says Rachel Rothman, Michael’s sister. “Basically it eats away at the nerves, so my brother had about thirty percent nerve function when he was first diagnosed; he’s back up to about between eighty and ninety percent at this point.”
“It’s very severe,” says Michael Rothman. “I’m very lucky because I can walk and run and do all these things but unfortunately a lot of people don’t get diagnosed very quickly and they ultimately can’t walk or are bound to a wheelchair. ”
Instead of letting the disease get him down, Michael and his family decided to take action.
“My parents along with my brother started a fund at Columbia University Medical Center to help fund research for this disease because it’s very unknown and often misdiagnosed,” says Rachel Rothman.
On Sunday, the Michael D. Rothman Research fund held it’s second run/walk event to raise awareness and fundraise for the cause. The event, known as the Mike Mile, brought hundreds of people to High Ridge Park.
“Michael’s bravery under difficult circumstances, his desire to make something good out of his difficulties is to be deeply admired,” says Connecticut Governor Dannel Malloy.
State Representative William Tong says, ”It’s touching and it takes a lot of courage; it takes a lot of energy and effort.”
“I talked to Mike personally before the race,” says participant Matt Schenkman. “He’s just a very good kid, lots of heart and it’s a really good cause.
“I think it’s great that this young kid is putting his resources to work to help other people,” says Maria Carlucci.
The Rothmans say more than 200 people participated in the Mike Mile, raising over $40,000 for the research fund.
“It’s just been amazing, all the support of everybody,” Michael Rothman says.
For more information about Michael Rothman’s fund, visit http://www.michaelcidp.com